If I Count The Ways I Love You - Rare Disease Awareness ❤️
If I count the ways I love you
I’d ask, “Why does it always have to be me?”
Like I did when I was a young girl
Numerous blood draws and surgeries
My friends don’t know my true pain
Not even the ones that know my medical history
I do my best to stay positive despite the outcome
There are treatments but no cure
For what I have
This disease
But someone’s got it worse than me
pain and headaches- just breathe
Thanks for telling me that its okay to cry
When my body doesn’t know that it needs to but my mind relaxes in response
That “it’s okay to cry”
I cry and cry and cry
Sometimes I need to be told that
I cannot handle it alone
But if I count the ways I love you
I’d count my family and friends first
For understanding what it’s like for me to live
To continue to accept my self
She’s constantly on the brink of anxiety, joy, and sadness
But now I’d include me too
Not loving myself last or less
But loving myself equally
More tomorrow than today
These are the words I would say
If I count the ways I love you
Note: this story is true. I actually do have Coats disease (rare eye disease) and other stuff including generalized anxiety. It’s not something I talk about normally, but I felt this way today so I decided to write a poem to express my emotions. I hope if you’re reading this you know that its okay to cry, to accept whatever it is you’re going through and to keep moving forward. ❤️